Diagnostic Consortium to Advance the Ecosystem for Hereditary Angioedema (hereafter referred to as “the Consortium”) has established the following “Personal Information Protection Policy” to protect the handling of information that can identify specific individuals (hereafter referred to as “personal information”) handled in the course of business.
Definition of personal information
The term “personal information” refers to information that can be used to identify specific individuals, such as addresses, names, telephone numbers, e-mail addresses, etc., provided to us in the course of our business, on our website, or through e-mail.
Purpose of collecting personal information
The Consortium will collect personal information to the extent appropriate to carry out its business. When we request the provision of personal information, we will do so only after clarifying the purpose of the request.
Scope of use of personal information
We will not use the personal information provided to us for any purpose other than to carry out our business.
Disclosure of Personal Information
We will not disclose, transfer, or lend the collected personal information to any third party. However, this does not apply in any of the following cases.
・When you have consented to the disclosure of your personal information.
・When disclosing information to a contractor to which the Consortium outsources operations in order to carry out its business.
・When the data is processed as statistical data in such a way that individuals cannot be identified.
・When there is an imminent danger to the life, body, or property of a person and there is an urgent need.
・When disclosure of personal information is required by law.
Management of personal information
We take the utmost care in managing personal information to prevent misappropriation, falsification, or leakage to outside parties.
Changing or deleting personal information
If you wish to inquire about, confirm, or correct your personal information, we will respond to your request as soon as possible.
Compliance with relevant laws, regulations, and other rules
The Consortium will comply with Japanese laws, regulations, ordinances, and other rules applicable to personal information held by the Consortium.
Protection of Personal Information
The Consortium has implemented necessary security measures and firewall construction to prevent unauthorized access, loss, destruction, falsification, and leakage from outside. In addition, we have taken the best possible measures to encrypt and protect the information that members send over the Internet by using the SSL (Secure Sockets Layer) encryption security system. In addition, we have contractually obligated vendors and organizations to which we disclose or provide personal information to manage member information in the same manner as we do.
A cookie is a small data file that is sent from a website’s server to a visitor’s hard disk or memory to identify the visitor. Cookies are stored on your computer when you visit our website, but the information stored does not contain any personal information. However, the recorded information does not contain anything that identifies the individual. However, the information recorded does not contain any personal information. The purpose of cookies is to provide information in accordance with the visitor’s wishes, and is in no way an invasion of privacy. You can set your browser to accept or reject cookies, or to display a confirmation message. However, if you disable the acceptance of cookies, you may not be able to use some of the services and functions of our website. Please understand this in advance. (The setting method differs depending on the browser, so please check the “Help” menu of the browser you are using for details.
Personal Information at Linked Sites
Our website contains links to other websites in order to provide useful information and services related to our business. The Consortium assumes no responsibility for the security of personal information on linked sites. Please use them at your own discretion.
For inquiries regarding personal information, please contact
For any other inquiries regarding personal information, please contact the following.
Diagnostic Consortium to Advance the Ecosystem for Hereditary Angioedema